North West Genomic Medicine Service Alliance
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DRAFT Implementation Guide

This is for collaboration and discussion purposes and is subject to change.

North West Genomic Medicine Service Alliance - Local Development build (v0.0.1) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: Ethnicity - XML Representation

Draft as of 2025-06-19

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<ValueSet xmlns="http://hl7.org/fhir">
  <id value="ethnicity"/>
  <text>
    <status value="generated"/>
    <div xmlns="http://www.w3.org/1999/xhtml"><p class="res-header-id"><b>Generated Narrative: ValueSet ethnicity</b></p><a name="ethnicity"> </a><a name="hcethnicity"> </a><p>This value set includes codes based on the following rules:</p><ul><li>Include these codes as defined in <a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland"><code>https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland</code></a><table class="none"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-L">L</a></td><td>Asian or Asian British - Any other Asian background</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-K">K</a></td><td>Asian or Asian British - Bangladeshi</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-H">H</a></td><td>Asian or Asian British - Indian</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-J">J</a></td><td>Asian or Asian British - Pakistani</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-N">N</a></td><td>Black or Black British - African</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-P">P</a></td><td>Black or Black British - Any other Black background</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-M">M</a></td><td>Black or Black British - Caribbean</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-G">G</a></td><td>Mixed - Any other mixed background</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-F">F</a></td><td>Mixed - White and Asian</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-E">E</a></td><td>Mixed - White and Black African</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-D">D</a></td><td>Mixed - White and Black Caribbean</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-S">S</a></td><td>Other Ethnic Group</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-C">C</a></td><td>White - Any other White Background</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-A">A</a></td><td>White English, Welsh, Scottish, Northern Irish or British</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland#UKCore-EthnicCategoryEngland-B">B</a></td><td>White Irish</td></tr></table></li><li>Include these codes as defined in <a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales"><code>https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales</code></a><table class="none"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales#UKCore-EthnicCategoryWales-T">T</a></td><td>Arab</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales#UKCore-EthnicCategoryWales-R">R</a></td><td>Chinese</td></tr><tr><td><a href="https://simplifier.net/resolve?scope=fhir.r4.ukcore.stu3.currentbuild@0.0.19-pre-release&amp;canonical=https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales#UKCore-EthnicCategoryWales-B">B</a></td><td>Gypsy/Traveller/ Irish Traveller</td></tr></table></li><li>Include these codes as defined in <code>https://nw-gmsa.github.io/CodeSystem/nwgmsa</code><table class="none"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td></tr><tr><td>SouthEastAsian</td><td>South East Asian</td></tr><tr><td>NorthernEuropean</td><td>Northern European</td></tr><tr><td>JewishNOS</td><td>Jewish NOS</td></tr><tr><td>IrishTraveller</td><td>Gypsy/Traveller/ Irish Traveller</td></tr><tr><td>Traveller</td><td>Gypsy/Traveller</td></tr><tr><td>Roma</td><td>Roma</td></tr><tr><td>AshkenaziJew</td><td>Ashkenazi Jew, follower of religion (person)</td></tr></table></li><li>Include these codes as defined in <a href="http://loinc.org"><code>http://loinc.org</code></a><table class="none"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td></tr><tr><td><a href="https://loinc.org/LA28803-7/">LA28803-7</a></td><td>Prefer not to say</td></tr></table></li></ul></div>
  </text>
  <url value="https://nw-gmsa.github.io/ValueSet/ethnicity"/>
  <version value="0.0.1"/>
  <name value="Ethnicity"/>
  <title value="Ethnicity"/>
  <status value="draft"/>
  <experimental value="false"/>
  <date value="2025-06-19T14:44:16+00:00"/>
  <publisher value="NHS North West GMSA"/>
  <contact>
    <telecom>
      <system value="url"/>
      <value value="https://www.nw-gmsa.nhs.uk/contact-us"/>
    </telecom>
  </contact>
  <description
               value="This extends [UKCoreEthnicCategory](https://simplifier.net/hl7fhirukcorer4/valueset-ukcore-ethniccategory) to include other categories for reasons stated in [Wikipedia: Classification of ethnicity in the United Kingdom](https://en.wikipedia.org/wiki/Classification_of_ethnicity_in_the_United_Kingdom#Healthcare)
See also NHS Data Model and Dictionary [ETHNIC CATEGORY](https://www.datadictionary.nhs.uk/data_elements/ethnic_category.html)"/>
  <jurisdiction>
    <coding>
      <system value="urn:iso:std:iso:3166"/>
      <code value="GB"/>
      <display value="United Kingdom of Great Britain and Northern Ireland"/>
    </coding>
  </jurisdiction>
  <compose>
    <include>
      <system
              value="https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryEngland"/>
      <concept>
        <code value="L"/>
        <display value="Asian or Asian British - Any other Asian background"/>
      </concept>
      <concept>
        <code value="K"/>
        <display value="Asian or Asian British - Bangladeshi"/>
      </concept>
      <concept>
        <code value="H"/>
        <display value="Asian or Asian British - Indian"/>
      </concept>
      <concept>
        <code value="J"/>
        <display value="Asian or Asian British - Pakistani"/>
      </concept>
      <concept>
        <code value="N"/>
        <display value="Black or Black British - African"/>
      </concept>
      <concept>
        <code value="P"/>
        <display value="Black or Black British - Any other Black background"/>
      </concept>
      <concept>
        <code value="M"/>
        <display value="Black or Black British - Caribbean"/>
      </concept>
      <concept>
        <code value="G"/>
        <display value="Mixed - Any other mixed background"/>
      </concept>
      <concept>
        <code value="F"/>
        <display value="Mixed - White and Asian"/>
      </concept>
      <concept>
        <code value="E"/>
        <display value="Mixed - White and Black African"/>
      </concept>
      <concept>
        <code value="D"/>
        <display value="Mixed - White and Black Caribbean"/>
      </concept>
      <concept>
        <code value="S"/>
        <display value="Other Ethnic Group"/>
      </concept>
      <concept>
        <code value="C"/>
        <display value="White - Any other White Background"/>
      </concept>
      <concept>
        <code value="A"/>
        <display
                 value="White English, Welsh, Scottish, Northern Irish or British"/>
      </concept>
      <concept>
        <code value="B"/>
        <display value="White Irish"/>
      </concept>
    </include>
    <include>
      <system
              value="https://fhir.hl7.org.uk/CodeSystem/UKCore-EthnicCategoryWales"/>
      <concept>
        <code value="T"/>
        <display value="Arab"/>
      </concept>
      <concept>
        <code value="R"/>
        <display value="Chinese"/>
      </concept>
      <concept>
        <code value="B"/>
        <display value="Gypsy/Traveller/ Irish Traveller"/>
      </concept>
    </include>
    <include>
      <system value="https://nw-gmsa.github.io/CodeSystem/nwgmsa"/>
      <concept>
        <code value="SouthEastAsian"/>
        <display value="South East Asian"/>
      </concept>
      <concept>
        <code value="NorthernEuropean"/>
        <display value="Northern European"/>
      </concept>
      <concept>
        <code value="JewishNOS"/>
        <display value="Jewish NOS"/>
      </concept>
      <concept>
        <code value="IrishTraveller"/>
        <display value="Gypsy/Traveller/ Irish Traveller"/>
      </concept>
      <concept>
        <code value="Traveller"/>
        <display value="Gypsy/Traveller"/>
      </concept>
      <concept>
        <code value="Roma"/>
        <display value="Roma"/>
      </concept>
      <concept>
        <code value="AshkenaziJew"/>
        <display value="Ashkenazi Jew, follower of religion (person)"/>
      </concept>
    </include>
    <include>
      <system value="http://loinc.org"/>
      <concept>
        <code value="LA28803-7"/>
        <display value="Prefer not to say"/>
      </concept>
    </include>
  </compose>
</ValueSet>